Heartbreaking to read of Emma’s struggle. Tell her not to be afraid though that seems hollow to say when her body is resisting light and sound. But I do care and pray that this will pass soon!
Shameful they can’t do more than medicate but that’s ME/CFS-no one has answers.
we love Emma so much. i hate that she's so deep in it at the moment -- such a foul disease. the wisdom she’s imparted about living with M.E has done more to re-wire my brain than any of those garbage brain retraining programs that get pushed on us 🤪 such a beautiful and tender homage to your connection here, too. 💙
This is a powerful glimpse into the reality of ME. Thank you for sharing Emma's experience. Please thank Emma for allowing you to share. The more people start to understand the reality the faster help will come.
I'm not sure that my first message went through to you. I wanted to say how happy I was to see you and Kelly at the farmers' market yesterday. It warms my heart to visit with old friends. It's easy for me to forget the life that you experience every day and night. My heart goes out to you my friend.
It was wonderful seeing you at the farmers' market yesterday, and visiting with you and Kelly. It's easy for me to forget when I see you, the terror and fear that you feel through your illness.
My heart goes out to you, my friend. Although I can't even begin to imagine what you experience every day and night, I want you to know that I think about you, and care about you. You are a dear, sweet man. It makes me happy to be able to call you my friend.
I’m so glad Emma has you Hal ❤️ Please do let her know I continue to pray for her and think of her each day. This illness is wretched and the terror is real. May Emma feel the love being sent her way from around the world and around the clock.
Dear Hal, This truly is one of so many horrible orphan diseases that the medical community has neither the funds nor the pressing need to explore. And, as you know, my heart is broken for you, for dear, sweet Emma and all the others so alone facing pain, shattered nerves and a sense of hopelessness. I hold you all in my heart, in my prayers and in whatever comfort I can give. Peace
Bravery like this is extraordinary. I have so much admiration for Emma and for you, Hal. Thank you for sharing, inspiring us, and for fighting. We need to know and we care greatly.
So much gratitude for your continued communications & Emma generously okaying your sharing of her painful story. Powerful. I am glad many of you are connected thru zoom - and that you still have joy from the fringe.
Hi Hal! Your fringe tree is lovely. Spring won!
Heartbreaking to read of Emma’s struggle. Tell her not to be afraid though that seems hollow to say when her body is resisting light and sound. But I do care and pray that this will pass soon!
Shameful they can’t do more than medicate but that’s ME/CFS-no one has answers.
Is anybody listening who can figure this out?
we love Emma so much. i hate that she's so deep in it at the moment -- such a foul disease. the wisdom she’s imparted about living with M.E has done more to re-wire my brain than any of those garbage brain retraining programs that get pushed on us 🤪 such a beautiful and tender homage to your connection here, too. 💙
This is a powerful glimpse into the reality of ME. Thank you for sharing Emma's experience. Please thank Emma for allowing you to share. The more people start to understand the reality the faster help will come.
I pray you are right - that knowing means helping means healing. I can't truly comprehend the reality of ME, but Emma's voice gave me a glimpse of it.
❤️❤️❤️ - sending transatlantic love
Hi Hal,
I'm not sure that my first message went through to you. I wanted to say how happy I was to see you and Kelly at the farmers' market yesterday. It warms my heart to visit with old friends. It's easy for me to forget the life that you experience every day and night. My heart goes out to you my friend.
Fritz.
Hi Hal,
It was wonderful seeing you at the farmers' market yesterday, and visiting with you and Kelly. It's easy for me to forget when I see you, the terror and fear that you feel through your illness.
My heart goes out to you, my friend. Although I can't even begin to imagine what you experience every day and night, I want you to know that I think about you, and care about you. You are a dear, sweet man. It makes me happy to be able to call you my friend.
Fritz.
I’m so glad Emma has you Hal ❤️ Please do let her know I continue to pray for her and think of her each day. This illness is wretched and the terror is real. May Emma feel the love being sent her way from around the world and around the clock.
Love, Lindsay
(Boston, MA)
Dear Hal, This truly is one of so many horrible orphan diseases that the medical community has neither the funds nor the pressing need to explore. And, as you know, my heart is broken for you, for dear, sweet Emma and all the others so alone facing pain, shattered nerves and a sense of hopelessness. I hold you all in my heart, in my prayers and in whatever comfort I can give. Peace
Bravery like this is extraordinary. I have so much admiration for Emma and for you, Hal. Thank you for sharing, inspiring us, and for fighting. We need to know and we care greatly.
So much gratitude for your continued communications & Emma generously okaying your sharing of her painful story. Powerful. I am glad many of you are connected thru zoom - and that you still have joy from the fringe.