Emma, Peggy and Hal, thank you for this wonderful explanation of this illness. Even though I am a nurse who has worked out in the community for 50 plus years, I didn't fully grasp the devastation of this illness until I met Hal. Little is written and the severity is rarely disclosed. I feel strongly that we all need to campaign to drop Chronic Fatigue Syndrome as part of the diagnosis. It is too dismissive of the devastation of this illness. Keep on keeping on. I profoundly respect you.
It’s hard to believe anyone cares when it’s a misunderstood disease. I must admit when friend said she had it I thought- that’s too bad but not much else.
Now I’ve been down a year and still functioning but people don’t get that I’m not faking it. The fact you need recovery days really hit home!
This is so touching. I truly want to take MECFS out of your bodies and feed it back to the systems that fail. My mom lived with severe disability and lived in a nursing home. I also have lived with suicidality and severe grief. I know the body sovereignty you’re speaking of Emma. I wish there was a way to send sun through my skin. I’ll try. Let me know if you feel it.
Took the words and experiences right out of my mouth. And life. This needs to be in a you tube format. Somehow. It is so informative and real. Anyway, that’s MY opinion. Thanks to you three for doing this. Beautiful.
Have missed several episodes - but #111. Thank you for taking the time to share the experience. Hope there is an episode #222 - and hope there is more understanding, more care, a cure ...
I applaud you, Emma, and Peggy for helping me to understand about ME/CFS. I wish I could help you all to feel better. I am proud of you for getting clarifying information out to the public. I am glad you have each other. ♥️♥️♥️
Yes, radical acceptance is required. Rather, we are INVITED to acceptance. It is a different life. The gift of acceptance may bring many more gifts with it.
Emma, your story of the specialist saying you are a bit tired hit home. Been there, as I suppose we all have.
Thank you, Hal, Peggy and Emma. You are a voice for the millions missing. 🤍
Emma, Peggy and Hal, thank you for this wonderful explanation of this illness. Even though I am a nurse who has worked out in the community for 50 plus years, I didn't fully grasp the devastation of this illness until I met Hal. Little is written and the severity is rarely disclosed. I feel strongly that we all need to campaign to drop Chronic Fatigue Syndrome as part of the diagnosis. It is too dismissive of the devastation of this illness. Keep on keeping on. I profoundly respect you.
It’s hard to believe anyone cares when it’s a misunderstood disease. I must admit when friend said she had it I thought- that’s too bad but not much else.
Now I’ve been down a year and still functioning but people don’t get that I’m not faking it. The fact you need recovery days really hit home!
♥️♥️♥️Mary Ellen♥️♥️♥️
That was a beautiful podcast guys x
This is so touching. I truly want to take MECFS out of your bodies and feed it back to the systems that fail. My mom lived with severe disability and lived in a nursing home. I also have lived with suicidality and severe grief. I know the body sovereignty you’re speaking of Emma. I wish there was a way to send sun through my skin. I’ll try. Let me know if you feel it.
Dear Hal, Emma and Peggy:
Took the words and experiences right out of my mouth. And life. This needs to be in a you tube format. Somehow. It is so informative and real. Anyway, that’s MY opinion. Thanks to you three for doing this. Beautiful.
Thank you, Emma. Thank you, Peggy. Thank you, Hal. It’s heartbreaking to think of you not getting the support you need.
May the community at large and more over the medical community catch up.
Have missed several episodes - but #111. Thank you for taking the time to share the experience. Hope there is an episode #222 - and hope there is more understanding, more care, a cure ...
Peps care when they have a condition not before.
Celebrity always get the sympathy British or not. Whinny doesn't help or a pissitive Suzie sunshine doesn't help.
I applaud you, Emma, and Peggy for helping me to understand about ME/CFS. I wish I could help you all to feel better. I am proud of you for getting clarifying information out to the public. I am glad you have each other. ♥️♥️♥️
Yes, radical acceptance is required. Rather, we are INVITED to acceptance. It is a different life. The gift of acceptance may bring many more gifts with it.
Emma, your story of the specialist saying you are a bit tired hit home. Been there, as I suppose we all have.
I appreciate you all. 💕
It’s extremely isolating illness, I’m an empathetic person and do try to understand but it does blow my mind; I’ve googled it and I’m none the wiser
I care 😘 there’s a centre that I go called the Charcot Therapy Centre in Gloucester and there are people that use the Oxygen Tank with ME CFS x
Thank you all for sharing your stories. And the only thing I will add is how important I am also finding radical acceptance.