I totally get wanting to go 90 miles an hour all the time and then paying for it. I 've never heard of anyone who likes being a couch potato ending up with CFS. I'm glad you got your Cold Play weekend and I hope you'll get back on a good plateau soon!
I am so glad you are writing. It is an amazing outlet for lots of reasons. So sorry for your backlashes and hoping you are feeling better hour by hour. Glad you got to jam with Chris Martin!!
I was just wondering what to do in my house / garden bound ( 7 mths )
..PEM ( not like last wk end but not stable state) and your post came through . A god moment because I was planning my escape over the back garden fence through the derilict garden . But turned against the idea as A) pretty sure one of my house sharers would have something to say on it / poss report me
And
B) I figured if I got to the next street the misery afterwards of seeing ' community life wouldn't be worth it .
So I'm sitting ( well part laying in the shed instead .
The ' boom and bust ' cycle is pretty common for people with M.e / CFS ...until we learn and even then ...
If the jailor waves the keys and says back to life or stay put ? What will my choice be . Thing is I've learnt that my new normal isn't my new normal last summer and thats due to pushing . So my choices are made with the great fear in tact . I'm in post flare due to having my neighbour come visit for 40 mins so that tells of the sensitivity of the syndrome .
There's every hope though I don't doubt . Well I do but not today .
I was figuring as I was listening today that our human drive for more and further is due to the instinct of hunter gather . Never was I happier than roaming the land and collecting things .. I still do it when I can but in a large square garden patch . It brings me a lot of contentment though .
I'm trying to get the homeless team to see I need out door space but my housing officer is trying to make a concrete box sound enough ... Bless him .
Just for today God is there , this has to be enough because it's what's happening and every bit of rest is healing ...
I'm so sorry to hear about the crash(es), Hal. You put yourself through a lot over the last few weeks — but I know you wanted that to feel as close to "normal" as possible. I can't imagine how frustrating that must be. I'm so glad you were able to ride that adrenaline wave enough to jam with CM, but it's just total garbage that you have to deal with these after effects. Thank you for your honest post and beautiful writing, as always.
Thank you Hal for your honesty. I’ve had the dead singing Casey jones in my head all day today.
My heart is with you. Sending love ❤️
Thank you.
❤️ We’re sending love
Thanks. :) Sending love back.
:)
I totally get wanting to go 90 miles an hour all the time and then paying for it. I 've never heard of anyone who likes being a couch potato ending up with CFS. I'm glad you got your Cold Play weekend and I hope you'll get back on a good plateau soon!
Thank you, Jo.
I am so glad you are writing. It is an amazing outlet for lots of reasons. So sorry for your backlashes and hoping you are feeling better hour by hour. Glad you got to jam with Chris Martin!!
Thanks Carol.
Thank you, Hal. ❤️
❤️
I was just wondering what to do in my house / garden bound ( 7 mths )
..PEM ( not like last wk end but not stable state) and your post came through . A god moment because I was planning my escape over the back garden fence through the derilict garden . But turned against the idea as A) pretty sure one of my house sharers would have something to say on it / poss report me
And
B) I figured if I got to the next street the misery afterwards of seeing ' community life wouldn't be worth it .
So I'm sitting ( well part laying in the shed instead .
The ' boom and bust ' cycle is pretty common for people with M.e / CFS ...until we learn and even then ...
If the jailor waves the keys and says back to life or stay put ? What will my choice be . Thing is I've learnt that my new normal isn't my new normal last summer and thats due to pushing . So my choices are made with the great fear in tact . I'm in post flare due to having my neighbour come visit for 40 mins so that tells of the sensitivity of the syndrome .
There's every hope though I don't doubt . Well I do but not today .
I was figuring as I was listening today that our human drive for more and further is due to the instinct of hunter gather . Never was I happier than roaming the land and collecting things .. I still do it when I can but in a large square garden patch . It brings me a lot of contentment though .
I'm trying to get the homeless team to see I need out door space but my housing officer is trying to make a concrete box sound enough ... Bless him .
Just for today God is there , this has to be enough because it's what's happening and every bit of rest is healing ...
Thank you.
Sending love
Thanks Trish.
Already commented, now it’s gone.
Hm… not sure why that is.
I wrote it before I signed in.
What I originally wrote was:
Wow! The Casey Jones thing totally fits. And you wove it into your present situation! (At least that’s what I remember.)
I'm so sorry to hear about the crash(es), Hal. You put yourself through a lot over the last few weeks — but I know you wanted that to feel as close to "normal" as possible. I can't imagine how frustrating that must be. I'm so glad you were able to ride that adrenaline wave enough to jam with CM, but it's just total garbage that you have to deal with these after effects. Thank you for your honest post and beautiful writing, as always.
Thanks for reading, Matt. :)