“I’m interested in the change of thinking that comes with the changing severity of my symptoms.” Yes. This one was hard for me to hear because the grieving and wishing parts resonate so much, and listening while not doing well, it was difficult to find gratitude. Listening and reading again, I still find myself comparing myself unfavorably, and getting a bit sad and envious, but I more easily feel acceptance and even gratitude, with less tendency to sink into the lonely bitter place I find so easily when alone with the awful cognitive fog and other heavy exhaustion, pain, weakness and other limiting symptoms. Wanted to leave a comment in appreciation for you, Hal, even though I am usually a very private person who doesn’t like putting my thoughts in writing in public. It’s very hard for me to express myself accurately, so I usually don’t do it publicly. Hoping you’re ok, because the absence of an entry on Saturday was noticed by me.
Beautiful Hal. Agree with what has been said about your writing and the flow today. Also reminded me that I saved your what’s good prompt, and want to return to it. What’s good today is that I took a nap at a hotel in Boston without feeling like I was missing out on everything down in the ballroom. You’re with us in spirit here.
Lots of cool research coming out of IIMEC15 this week. It’s anyone’s guess, but I would think that we’d have a few new treatments by the end of this decade. Decade is a long time to wait, but if anyone can do it, we can.
Hal. I love how you left the recorder playing as a treat at the end Beautiful and beautifully done
I love the flow of this one. Stays real with each wave.
“I’m interested in the change of thinking that comes with the changing severity of my symptoms.” Yes. This one was hard for me to hear because the grieving and wishing parts resonate so much, and listening while not doing well, it was difficult to find gratitude. Listening and reading again, I still find myself comparing myself unfavorably, and getting a bit sad and envious, but I more easily feel acceptance and even gratitude, with less tendency to sink into the lonely bitter place I find so easily when alone with the awful cognitive fog and other heavy exhaustion, pain, weakness and other limiting symptoms. Wanted to leave a comment in appreciation for you, Hal, even though I am usually a very private person who doesn’t like putting my thoughts in writing in public. It’s very hard for me to express myself accurately, so I usually don’t do it publicly. Hoping you’re ok, because the absence of an entry on Saturday was noticed by me.
Beautiful Hal. Agree with what has been said about your writing and the flow today. Also reminded me that I saved your what’s good prompt, and want to return to it. What’s good today is that I took a nap at a hotel in Boston without feeling like I was missing out on everything down in the ballroom. You’re with us in spirit here.
Lots of cool research coming out of IIMEC15 this week. It’s anyone’s guess, but I would think that we’d have a few new treatments by the end of this decade. Decade is a long time to wait, but if anyone can do it, we can.
Beautiful writing, Hal; some of your best yet. Love that music, gratitude, and your community of followers are lifting your spirits.